We as adults forget and sometimes become flustered at how slowly children think as they learn. I have seen parents get upset as their kids sluggishly realize how something works and impede the family progression through the day. Grownups often forget how life looks from the eyes of the innocent while the neophyte inside of the child shines. Kids’ creativity continually causes cultivation proliferation.
The perspective of children should teach us all how to look at things with an innocent mind. At times we need to throw out our presumptive predilections and see things through the eyes of wonder and excitement of a child. I do not see several boxes in a stack, but I see the castle of Camelot to be defended by the Knights of the Round Table although the table is square. It is essential to let the kids be kids as they could unexpectedly invent the next big thing as they play, grow, and learn.
When I was a young child, my school went to visit COSI or Center of Science and Industry. We wanted to see what we could learn and participate in as everything was hands-on at this science center. I remember how we went to the mining exhibit to experience all aspects of the life of a miner. Eight kids at a time piled into this elevator to travel down many floors. I knew that the elevator was going down because there was a window that showed the walls were traversing towards topside. When we got off of the elevator exiting from the opposing door, we were in the deep dark depths of the city.
COSI is very good at sparking imaginations and causing kids creative minds to go wild. With my adult brain, I now understand that the walls that I could see through the elevator windows were on a revolving roller. I comprehend that the elevator was not going anywhere, and we exited from the opposite side of this permanent portmanteau. The adults in the lives of these children should be encouraging this ingenious innovation from these mini minds as often as we can.
The Vacation Bible School theme this year is Into the Wild while I’m looking at it from a child’s perspective. I walked into the woods with my friends and met some people who worked at the basecamp. They took us through tall trees that stood as high as the building where my mommy works. I saw a bridge that looked like it was hovering over a river with fish in it that sits just after the waterfalls. There were lots of trees and animals all around making everything like a real forest. We could see the sunlight as it peeked through the leaves and tree branches that lit our path to the next area.
Our journey took us first to a new part of the woods that was so big that a million of us fit at one time. Although there were trees all around us, some of the staff had music instruments that they played loudly. The lady in charge taught us a lot of great songs. This music made us dance to music and act silly and have lots of fun. These songs reminded us that Jesus loves us all even my big sister, who could not come to VBS this year. I just want to live here because I am having so much fun.
Next, we went to several different rooms for Storytime, crafts, games, and even ministries. VBS reminds us all always to be good people do good things and that Jesus loves us. After all of the fun things, we went back to listen to more merry music before our parents picked us up.
As parents, we teach our kids that all-so-famous song that goes “This little light of mine I’m going to let it shine.” The adults need to remember how famous that song truly is to the growth of children. It is essential that we feed their creative minds because we could be looking at the next genius. When you limit their creativity, you could be smothering the light of the next Einstein, Beethoven, Bill Gates, or even Steve Jobs. The history books are full of people who as children were told that they would never amount to anything, and then they proved the nay-sayers wrong.
Play is the highest form of research.

I received a text telling me of their imminent arrival in approximately thirty minutes. Following a long half hour wait, I heard car doors shutting and voices getting close to my entryway. I whipped my wheels around to answer that famous ding-dong that soon followed as they promptly pushed the doorbell. After their arduous and adventurous eighteen hour peregrination, they walked in carrying fast-casual eats. They brought a big brown bag brimming with bulky burrito bowls from the famous Chipotle down the street.
I cannot see causing me to reach out for help, but there is no one. The light is being blocked by the magnificently majestic amounts of food that they have brought. Like when a cloud blocks the sun, I can only see a few things, and these items are the only ones that I can reach.
For the first few days, my mom continually cooked meals in the crockpot to freeze. For example, on day one, she made enough chili for a family of four with two growing boys. She prepared it and then put it into Ziploc hard containers for the deep freeze. Mom allowed them to cool on the counter and then placed them in the icebox. She then washed the crockpot by hand and prepared to cook something the next day. She is filling my freezer to the brim with plenty of bean soup, chili, chicken noodle soup, and spaghetti.
The meals that mom has been cooking leaves an amazingly awesome aroma in the air that no TV dinner or cold sandwich could. I wake up the next morning, and this fantastic aromatic breeze still lingers and covers the smell from my air freshener.
My mom and Phil helped me hang some pictures on the walls and a valence on my window. She gave me plenty of great design ideas to give my house that comfortable lived in look. I can continue to work on these creative concepts even when she goes home. However, since the internal image of my house sits so low on my priority list, those concepts will not likely come to fruition. Not to mention that at a thousand miles away from my mom’s enthusiastic encouragement it holds little sway over my follow through.
My buddy came over with a pizza so that we could have a conversation and mastication. We talked about many things, including how my wheelchair life had begun a few weeks earlier. I was deeply discouraged and disheartened at my new station in life, so this was the focus of our colloquy. I allowed my intensely irrational imagination to run wild on how my existence in a wheelchair would look. My profoundly creative brain showed me a purgatory on earth. This perdition would have roads made of gravel and friends and family on a sandy beach that I could not traverse.
I still did not have a way to get in and out of my house using this new wheeled mechanism. My friend happened to know the right person at his church to ask for help with this radically ramping riddle. There were some minor back and forth conversations, trying to figure out exactly what was needed for the requirements of my house. More importantly, we had to wait for winter to end before they could begin construction on my new elevation inclination. Building this big beautiful bridge took four gentlemen an entire weekend to construct.
My friend, who had been in the Air Force, realized that the best thing that he could do for me was to challenge me. He told me that if I did a 5k race in my chair that he would walk with me, and together we would conquer this beast. This new goal of mine had me searching for a 5k race in Columbus that would fit my needs. This monster had to have a few things like a first aid lodge, bathrooms, and a place at the halfway point to stop and eat lunch. Apparently, for a 3.1-mile race, they do not include those amenities, so I settled for a first aid tent and banana at the end of the race.
On the first distance trip, I planned on conquering the world or at least traversing a few miles. Sadly it did not take me long to realize that I did not yet have the muscles that a race like this demanded. On day one, I completed an excruciatingly exhausting 0.2 miles. I now understood that this training would take more time than I thought and there were now only four months until race day.
Every day I wheeled around my neighborhood and watched my distance grow regularly. I met some perfectly pleasant people, and I explained my 5k goal. While I trekked around the community, I celebrated every milestone that I achieved. I saw several people frequently as some walked dogs, and others walked part of my practice trip alongside me. My circuitous route took me around a school several times and all through my neighborhood. I watched as nearly every day and more quickly than I expected my distance crept higher and higher.
The race was excessively, excruciatingly, exhaustingly long at 5 kilometers or 3.1 miles to be exact. Of all of the wheelchair users that day I came in first place and got my picture in the newspaper. So after exactly four months and one day of training and starting with 0.2 miles, I completed 4.11 miles that day.
The Boy Scouts and the Marine Corps have both molded me into a man who has never been afraid of hard work. I used to find the point of working too hard and hover dangerously close to that line and only periodically crossing over. Working hard was never good enough, and I would often push it to the extreme always doing a little more. Consistently putting excessive effort into everything that I did and using every ounce of my energy until the job was complete.
When I return home on the day of my workouts, I am weaker, limiting many of my daily duties. My dinner and evening cleanup is impacted significantly, and my evening tasks are discouragingly diminished. However, my strength slowly returns by the next morning, making that the day that I try to get things done.
So here I sit contemplating my complicated conundrum. I have been swimming seemingly indefatigably three days a week for the past two years. The day after each swim day, I have a full day of needed respite that I must now fill with more physical activity. My new enigma is how I do both events without crossing that MS line of too much. With multiple sclerosis, that line of too much jumps like a caffeinated Chihuahua making it hard to not pass.
The hate, sadness, and self-centeredness that fill our world all demand joy, happiness, and humility to counteract its impact. However, there are a time and place for everything, and not every moment is the correct instant for every comment. I try to keep life fun by using humor to exploit every situation. I always try to take a good or bad circumstance and find its funny aspect. However, I have recently realized that I sometimes need to change my tune. In specific situations, I tend to take it a bridge too far, and I do not read the moment like I should.
Often I take it excessively far at the improper point and place. Medical situations like hospital visits and doctor appointments are not complementary comedy conditions. I am the knucklehead who thinks it is ok to be funny while riding in an ambulance in a snowstorm on icy roads. I soon realized that they probably have some tape to put over my vocal hole to get some quiet so I decided to zip it. Thankfully for them, it was only a thirty-minute drive, and I stopped talking after ten minutes or so.
I was at the pool, and I had quite literally fallen during my transfer on my last visit. The lifeguard was there and asked if I was feeling ok to make the transfer this time. I said, “sure, but if I do not make it tell my mom, I love her.” He knew that I was joking from my laughing, but he did not walk away until I safely transferred from my chair.
It is complicated to break a habit as I have become proficient in this punctually practiced proclivity. These jokes make me laugh, but the professionals involved tend to be all business and have no time for my shenanigans. This behavior has been going on for an excessively long time and needs to change. My new job is to focus hard on my conduct and slowly change my inclinations and become more mundane in some situations.
When I was a boy, I was very active in the Boy Scouts. To find me packing for a camping trip was not a surprising discovery as our Boy Scout Troop camped once per month. I enjoyed being surrounded by Mother Nature to meditate in her awe-inspiring beauty. These trips allowed me to escape the troublesome topics of my childhood and let me contemplate conundrums as they arose. I would, of course, have everything resolved in a weekend like a TV sitcom.
As I packed, I suppose that I was in my own little world, although others might simply say that I was oblivious to everything. None the less I had a camping preparation procedure making packing a very systematic endeavor. I knew that every time that a certain father went camping with us, it was guaranteed to rain. Since this dad was going camping that weekend, this meant that bad packers would have to work with wet woes. I had been in the scouts for several years by then and could not make errors like that. I had to stand out as a positive example for the new boys.
My buddy, Mike’s mom, was driving the four of us, both of the mothers, Mike and me down to the camp for the weekend. When Mike and his mom showed up, I loaded my pack into the trunk. When Mike’s mom, Sandy, saw my mom’s overnight bag, she posed a query. “Where are your camping stuff and sleeping bag?” she questioned. My mom explained that she did not need it because they were staying in a lodge. Like a petulant little girl who does not want to wear her shoes for the day my mom was sent back inside. She was told to at least get a couple of blankets and towels, and without the dramatic stomping, she complied. Little did my mom know what she was in for.
All of the mothers arrived to see the retired rickety Boy Scout camp first aid lodge. This lodge was where they would be living for the next three days and two nights. They walked in to find some rusted old hospital style beds complete with plastic covered mattresses from the 1970s. There was a nice layer of thick green mold in the sink to protect any dishes that they may drop. There was also a chunky coating of blue-green mold in the tub to protect anyone who fell while showering. The lodge had running water because outside it rained significantly, the roof was punctured severely, and the ceiling leaked profusely.
The scouts moved through the next day as the mothers conversed and contemplated everything that they observed. The boys demonstrated doing dishes and other daily duties on a camping trip. They also displayed the patrol boxes and explained everything that each patrol had in their box and what they could do with its contents.
Saturday night for dinner, the boys made foil dinners for the moms. These foil packets had a hamburger patty along with cut veggies and sliced potatoes. Then the foil packs were salted, sealed tightly, and placed on hot coals to cook for 30 to 45 minutes. The moms appreciated coming to the campsite to get a hot meal and not having to clean up afterword. Although they were getting used to their new sleeping quarters, no meal cleanup took the sting out of the dilapidated conditions. The moms were delighted and proud to see their sons in their element. They later enjoyed the activities around the campfire that evening.
At an annual eye appointment, I brought up an annoying eye issue. At the place where my two eyelids meet, there was a raised spot on my skin that would periodically prickle. This itchy issue was not a significant concern for me, but I wanted to mention it just the same. The doctor wanted to get a closer look at it because I rarely bring anything up, meaning this might be important.
Down the corridor, and in the next hallway, there was a small room with a machine that looked similar to the previous device. The tech asked me to set my chin on the metal plate while resting my forehead against a white plastic band. While I was in this position, the photographer tech was viewing my eyeball close-up. This chore allowed him to take photos while looking at everything on a computer screen. These images showed extremely close pictures of this minuscule blemish allowing a better look at this optical occlusion. Sadly, this seemingly infinitesimal imperfection was not evident, and a better set of images were still needed.
I sat in the waiting room cautiously optimistic of my appointment with this visual virtuoso. I was expecting the specialist to arrive in a chef’s hat and not a lab coat to slather this cream like peanut butter on my eye. Between our conversation and my imagination, I was misinformed enough to let the trepidation settle in. Every other thought vanished from my brain box except for the idea of this thick cake icing smeared over my eyeball. The longer that I waited, my heart began racing like the wings of a hummingbird after a triple shot expresso.
The ultrasound showed an unexpected benign cyst that was not of consequence to me once they used the word benign. The medical crew could not give a definitive answer on what the ocular obtrusion was. However my doctors plan to keep an eye on it, pun intended, with as needed future ultrasounds. It is also the case for the itty bitty on my eyeball. So I can rest assured that I am not losing an eye or going blind anytime soon.
Someone recently told me that I was an inspiration to them, but I do not feel like an inspiration. This person explained to me that I have a great attitude. They shared that I have an excellent positive disposition despite the numerous adversities that were placed in my path. They do not realize that my life is not pansies and puppies especially when dealing with my MS. These compliments make me think that the definition of inspiration might be nebulous. The following stories tell the tales of those who are inspirational individuals to me.
With his wife and family by his side, he now does more in a day than most of us do in several days. He talks with all of the returning veterans mostly focusing on the severely wounded. He has a fitness training regimen rivaled only by die-hard fitness junkies. He also wrote a book sharing his life story and often does book signings as well. This amazingly inspirational book is called “Tough as They Come.” Travis shows that nothing can stand in your way when you have the will to keep walking forward.
There is a woman Kanya Sesser who was born in Thailand. When she was born with no legs, her parents abandoned her at the hospital. An American couple later adopted her. She grew up and became a model, skateboarder, surfer, and a snowboarder. Kanya does not let the challenge of no legs slow her down and rolls through life with a smile.
There is another fellow named Nick Vujicic. He was born with no legs or arms and became a powerful motivational speaker. When confronted with his physically challenging life he did much more than anyone would have imagined. He speaks all over the world reminding people never to give up. Nick shows that with a compelling story and steady voice nothing can talk you onto the ledge.
People periodically ask me if I can cook and what do I like to cook. I tell them that things are pre and post MS for me now. For example, I could cook very well pre MS, and I received many appreciative accolades when I did cook. I explain that I began from a young age to prepare meals using the stove and oven. I was not merely assembling bologna sandwiches on the counter. From the age of thirteen, I was cooking for my mom so that when she got home from work, she could simply sit and scarf.
I learned so much about cooking as a young boy that I became pretty good at it, so cooking became second nature to me. It was as easy as tying one’s shoes. I cooked not only for my mom and sometimes friends but also as other situations would arise. I was extremely good at both cooking and baking doing whatever the case demanded.
Go to meal number one: I put about one cup of frozen precooked diced chicken into a bowl and microwave for one minute. Next, from the refrigerator, I get my oil and vinegar salad dressing of choice and parmesan cheese. I then open drain and dump in a bowl one can of sweetcorn and add chicken. At that point, I add the amount of salad dressing that I prefer and stir then add the cheese. Lastly, I get a starch like a slice of bread, pretzels or crackers and serve with a side of seltzer water.
Meal number three: first I cook in the microwave boil in bag rice and set it on the counter to rest. I place six precooked frozen meatballs in a bowl, and I cook them for sixty seconds. I have always been a bread snob and have always bought great bread that can handle a meatball sandwich. Then I season the rice typically with oil and vinegar dressing and serve it all with a side of seltzer water.
Thanks to WOSU television my education was extensive and varied. I saw these Italian, Mexican, Japanese and even southern chiefs cook foods from all over the world. My mom, of course, fed me well through my childhood as I always had three meals every day of my childhood. However, there were many times when she was still at work and would not come home just to make me a snack. That was abuse if you ask me. I ate great goodies during those times because I had the needed skills to cook and the required appetite to eat.
Nearly two years ago a friend recommended that I start a blog because of the many unique emails that I sent her. Out of absolute boredom, I packed her email with my creative discourse. I needed a creative outlet of some kind, and a blog was it. In the very beginning, it was basic nonsense and evolved into inventive nonsense on this blog. I was trying to learn about writing using trial and error.
Eventually, she recommended that I share my MS story on this blog. She told me that it would show others that my life has not always been sunshine and smiling faces. It could also indicate to other MSers how things will get better if they simply hold on. The idea of sharing my story terrified me more than anyone could ever imagine. With the proofreading skills of her and her husband, my writing got the help that was required. I was telling the story of my dark beginning and how that changed significantly for the better.
Amazingly, for the past several months I have also been a guest blogger for a national MS magazine online edition. I sent my untold MS story to an MS magazine to ask about publishing the story in hopes of helping others. They told me that they appreciated my story and explained where it would fit in the magazine in time. This woman then asked me if I would be interested in being a guest blogger for the magazine and explained what it would entail. I enthusiastically accepted the pleasant proposition.
At that time I did not know what to expect for this blog, so I kept my expectations low so that I would not be disappointed. I am incredibly moved and honored that my blog writings have positively impacted the lives of other MSers. I will continue to write, and I hope that my blog continues to make a difference in the stories of others.